This is long overdue. I thought when I created this blog that it would be easy to keep up. Let’s just say that I was wrong. It is easy to get distracted with other things. I would like to give an update of my time in isolation and since I’ve been back in Hawaii.
After getting my stem cell on the 12th of April, my blood count dropped enough for me to go into isolation on the 14th. Isolation was not that exciting really. During this time I continued to receive IV’s of meds. There were only two incidents that I think I worth mentioning.
I got a slight fever (99.5) and I immediately got meds put in my Hickman line that took care of the fever. Dr. F wanted to know if I ever got a fever that was 99.5 or higher.
The other incident was my platelets. When I was in isolation waiting for my blood count to bottom out, my platelets went down too far and I had to get a transfusion of platelets. This was something that I didn’t want to do, but I had no choice and ended up being no big deal. During the isolation time is when I started to lose my hair and one of the nurses came in and shaved my head. I also rubbed my chin in the shower and my goatee came off. I was hoping to grow one since I had no hair on my head, but it wasn’t to be.
I was out of isolation on the 25th of April. This was nice because my wife was able to come hang out with me again. Over the next few days my meds were tapered off and I got my ritaxumab treatment that lasted a few hours. I was then released on the 29th of April. My legs were too tired from the 5 weeks in the hospital that I did not go around the city. I did go to the mall to get some KFC though.
I returned to Hawaii on the 2nd of May. On cool thing was my two friends, Mike and Brian, from when I was in the Army showed up at the airport with shaved heads to support me and my journey. I think that was way cool. That is one thing about the military, the friendships you make will last a lifetime and they will be there for you during tough times.
The recovery process is a little harder than I thought it would be. My legs are weak, but I try to do some exercises every day and they seem to be getting stronger. I had my blood drawn after two weeks back in Hawaii and my blood levels are pretty much back to normal levels. I did get a cold a couple of weeks ago and it is slowly getting better. I went to the doctor 3 times this past week to get meds. Hopefully it will be gone before the weekend.
That is the highlights for now. Thank you everyone for your concern and words of encouragement. I hope to give everyone an update in a week or so.